Man in wheelchair pushing his child on the swing

Throughout the year, NCAPPS will host informational webinars on a variety of topics related to person-centered thinking, planning and practice. The webinars are open to the public and the content is geared toward human services administrators, providers, and people who use long-term services and supports.

All webinars will include a panelist who represents the perspective of service users; this may be a member of the Person-Centered Advisory and Leadership Group, a self-advocate, or another stakeholder with lived experience with the topic. Each webinar will be recorded and archived to the NCAPPS Resources page.

Upcoming Webinars

Improving Brain Injury Systems: Stories from a NCAPPS Learning Collaborative

October 21, 2021 3:00-4:30 pm Eastern

To register, visit https://zoom.us/webinar/register/WN_PZ-0udCaR9KyP3ztH7j4DQ




Better Together: Brain Injury Survivors Building Community & Making a Difference

October 5, 2021 3:00 - 4:30pm Eastern

To register, visit https://zoom.us/webinar/register/WN_2Sd4coK4SQur6VYMTfxJPg

In this webinar, brain injury survivors, caregivers and others with the lived experience of disability will learn ways to be successful when participating in team projects. Project leaders will learn what works and doesn’t work when engaging people with the lived experience of brain injury.

The content of this webinar is based on brain injury survivors’ experiences in the National Center on Advancing Person-Centered Practices and Systems (NCAPPS) Brain Injury Learning Collaborative from January 2020 to August 2021.

During this time, teams in 15 states worked toward aims to make brain injury services more person-centered.

Each team included members with the lived experience of brain injury. In addition, the Learning Collaborative included three faculty members who were brain injury survivors and experienced advocates.

The three faculty members and lived experience advisors created a vibrant community of advocates within the Learning Collaborative. This community positively impacted not only the individuals involved, but also their teams, the Collaborative, and the larger brain injury community, serving as a model for successful survivor engagement.

Meet the presenters


Carole Starr

Carole Starr sustained a brain injury in a car accident, which left her unable to return to her life as an educator and classical musician. Over time, Carole reinvented herself. She’s now a national keynote speaker, the author of the award-winning book To Root & To Rise: Accepting Brain Injury and the founder/facilitator of Brain Injury Voices, a nationally recognized survivor volunteer group. Carole is a member of the NCAPPS faculty.

Kelly Lang

Kelly Lang has been a brain injury survivor, caregiver, and advocate for 20 years. She served on the board of the Brain Injury Association of Virginia for 6 years and was recently on the faculty of the NCAPPS Brain Injury Collaborative. Kelly is currently a member of the Brain Injury Association of America’s Advisory Council and the Virginia Brain Injury Advisory Council. Kelly has also presented to local, state, and national groups.

Maria Martinez

Maria Martinez holds degrees in Art Education and English as a Second Language from University of Northern Colorado. She has worked in the fields of domestic violence and corrections. Maria is a survivor of a stroke and a brain injury. Maria is a support group leader, peer mentor, brain injury advocate and non-profit Director. She is a board member of the Colorado Advisory Board, Professional & Lived Experience Contributor to the NCAPPS Learning Collaborative and National TBI TARC.

Rodney Smith

Rodney Smith is a U.S. Army veteran, father, grandfather, and TBI survivor and advocate. He sustained brain injury when a pickup truck failed to see him and crossed the road in front of his motorcycle. Rodney got involved with the Brain Injury program in West Virginia with the hope that he could help people with TBI, and their families have better lives and avoid the frustrations he went through trying to find right help after his accident.

Eric Washington

Eric Washington sustained concussion and spinal cord injury while playing football for the University of Kansas. After recovering from his injury, he graduated with a bachelor’s degree in Applied Behavioral Sciences. Today, he is a passionate advocate for TBI survivors of color, and TBI survivors who are homeless. Eric served as a faculty member on the NCAPPS Brain Injury Learning Collaborative and was particularly instrumental in supporting brain injury survivor support groups in Colorado.

Austin Duncan

Austin Duncan is a severe TBI survivor and medical anthropologist working with the Sonoran Center for Excellence in Disability and Department of Pediatrics at the University of Arizona. His NSF-sponsored research focuses on the sociological intersections and public policies of neurological disabilities, including Traumatic Brain Injury (TBI). He teaches courses in disability studies to students with the UA College of Medicine and College of Social and Behavioral Sciences.

Amy Robinson

Amy Robinson is a proud parent/caregiver and advocate for her 11-year-old son who has multiple special health needs. She is also an assistant professor in the Department of Communication Sciences and Disorders at University of North Dakota (UND) where she supervises support groups for patients with an aphasia diagnosis. Prior to UND, Amy spent 20+ years working for Robbinsdale, MN public schools as a speech-language pathologist. She regularly consults with North Dakota Brain Injury Network and received her Certified Brain Injury Specialist (CBIS) certification in Spring of 2020.




NCAPPS is an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services to help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.







Past NCAPPS Webinars

August 2021 - Person-Centered Supports in Popular Culture

Person-Centered Supports in Popular Culture


Wednesday, August 18, 2021


The stories we tell ourselves in popular culture reflect and, in turn, shape the world in which we live.

Our shared stories influence our perceptions of everything, including the support systems used and sometimes created by people with disabilities. Popular culture narratives create a context for both the formal and informal support services and goods that many people learn to expect in their daily lives.

Pop-culture representations also influence our judgment of caregiving practices, decision-making procedures, types and levels of accommodations for people with disabilities, and indeed, the people who make up this population. As a result, the public is exposed to media representing only a very limited perspective on how people with disabilities actually navigate the world.

In this webinar, disabled activists will come together to discuss pop-culture depictions of accommodation and support for people with disabilities. What values have those popular narratives created, nurtured, or destroyed over time? Do more recent depictions reinforce or undermine those older narratives? How is person-centered support illustrated, and how do those illustrations affect our daily lives?

Meet the presenters


Andy Arias

Andy Arias is an actor, producer, and advocate. He has produced many films including The Unicorn Closet and the critically acclaimed Extra Special. He is currently producing the documentary Dani’s Twins. In his work, Andy strives to create true portrayals of people with intersecting marginalized identities. Andy also works as an adjunct faculty at Georgetown University, where he highlights the crucial role of media and its ability to influence and shift perceptions.

Kathy Flaherty

Kathy Flaherty is the Executive Director of Connecticut Legal Rights Project, Inc, an agency that provides legal services to low-income individuals with mental health conditions on matters related to their treatment, recovery, and civil rights. Kathy combines her personal experience as a psychiatric and long COVID survivor and her legal background to speak to issues affecting people with disabilities. Kathy lives in Newington, CT with her husband, Jim Valentino, and their rescue cat Stella. Kathy is on Twitter @ConnConnection. Kathy has written op-eds on a variety of topics, including politics, law, mental health, adoptee rights, and soccer.

Finn Gardiner

Finn Gardiner is a disability rights advocate with interests in educational equity, intersectional justice, comparative policy, and inclusive technology. Finn holds a Master of Public Policy degree from the Heller School for Social Policy and Management at Brandeis University and a bachelor’s degree in sociology from Tufts University. Finn is currently the Communications Specialist at the Lurie Institute for Disability Policy at Brandeis University.

Mary L. Radnofsky

Mary L. Radnofsky, Ph.D., is a former ghostwriter and college professor of Education and Human Development, French, Astronomy, and Qualitative Research; she also founded and ran the Socrates Institute, a non-profit educational organization for over twenty years. Dr. Radnofsky, who has had vascular angiopathy for over 15 years, is the first person with dementia to speak at the United Nations regarding the Convention on the Rights of Persons with Disabilities. She has travelled globally with her medical alert dog, Benjy, to discuss the rights of people with dementia, conducting simulations for care partners to practice human rights-based communication techniques.


Resources:




NCAPPS is an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services to help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.

July 2021 - Person Centered Planning and Supports for Vaccine Access

Person Centered Planning and Supports for Vaccine Access


Wednesday, June 21, 2021


No Wrong Door (NWD) programs and grantees have a key role to play in supporting people to gain needed information to navigate and take action in the context of the ongoing COVID-19 public health emergency. This includes supporting people to take action that is supported by public health guidance, including accessing the COVID-19 vaccine. Applying a person-centered lens, it is critical to help people have the information they need and to balance what is “important to” and what is “important for” them. Tools and approaches that support person-centered planning can be used to help people access information they need to inform their choices, and to support decisions that balance personal preferences and values with health needs for the person and from a public health perspective.

This webinar was originally broadcast for a small group of NWD state grantees on July 21, 2021.


Resources:




NCAPPS is an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services to help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.

June 2021 - Person-Centered Systems Change

Person-Centered Systems Change: Reflections from the First NCAPPS Technical Assistance Cohort


Wednesday, June 23, 2021


In 2019, NCAPPS received 45 applications for technical assistance with requests for support to enhance staff competencies, engage stakeholders, strengthen quality improvement, and build cross-system consistency for person-centered thinking, planning, and practice. In this webinar, representatives from four of the 15 NCAPPS states will showcase their achievements and share what they’ve learned and what they plan to do next. The panel will then be engaged in a discussion facilitated by people with lived experience who’ll provide insights into why engaging people who use services is essential for person-centered systems change. The webinar will close with information about how to apply for the next round of NCAPPS Technical Assistance.

Meet the presenters


Mary Bishop

Mary Bishop believes every social work position in her career prepared her to be Texas Health and Human Services’ Person-Centered Practices Team Lead. She has partnered with those living in Intermediate Care Facilities in Michigan, Iowa, and Texas; directed a children’s shelter, nursing communities, hospice, home health, and elders needing behavioral health supports. She owned a social service agency and works with the State of Texas in various rights and advocacy roles for 20+ years.

Saska Rajcevic

Saska Rajcevic, MPA currently works as a Policy Specialist for the Division of Services for People with Disabilities (DSPD) and serves as the lead for Utah’s NCAPPS technical assistance grant. In her role, she focuses on the implementation of person-centered practices, systemic change, stakeholder engagement, and compliance with the Settings Rule. Her background is in the field of disability advocacy with an emphasis on public policy.

Patricia Richardson

Patricia Richardson is currently serving as the Statewide Aging and Disability Resource Coordinator for the Department of Aging and Disability Services, State Unit on Aging. Patricia has been involved in the state’s development of the No Wrong Door system for long-term services and supports through the Administration for Community Living No Wrong Door grants to Connecticut. She is the state lead on the NCAPPS committee to work on Person Centered Thinking and Planning in CT.

Jonas Schwartz

Jonas Schwartz is a Program Manager for the Vocational Rehabilitation Division at the Texas Workforce Commission. Jonas has worked for the past 25 years on public policy issues that impact people with disabilities in Texas. More specifically, he has worked on employment, housing, transportation and ensuring that Medicaid Long Term Services and Supports are available to people who need them.

Thom Snyder

Thom Snyder has worked in the field of aging since 1986. He currently serves as an Aging Services Coordinator at the Georgia Division of Aging Services, with responsibilities for community-based Case Management, grant writing, program performance measurements, and is Team Lead for the Caregiver Specialist, Senior Community Service Employment Program Coordinator, and the Evidence-Based Services Program Coordinator. He also serves as the Division liaison for Coordinated Transportation and Behavioral Health services. He holds B.A. from Mercer University, and a Master of Divinity in Pastoral Care and Counseling from Southern Baptist Theological Seminary.

Michaela I. Fissel

Michaela I. Fissel is a person in long-term recovery and enjoys backpacking, yoga, dancing, gardening, spending time with her three children and hanging out with their chickens. Michaela is Executive Director at Advocacy Unlimited, Inc. – a peer-run organization, and has worked in the behavioral health field as a community researcher, activist, and non-profit administrator for nearly 15 years.


Resources:




NCAPPS is an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services to help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.

May 2021 - Person-Centered Goal Discovery for People with Dementia

Person-Centered Goal Discovery for People with Dementia


Tuesday, May 18, 2021


Part of the National Alzheimer’s and Dementia Resource Center webinar series and in collaboration with National Center on Advancing Person Centered Practices and Systems, sponsored by the Administration for Community Living


Supports for people living with dementia and their families are most effective when they are person-centered, and the result of a thoughtful and responsive planning process, which takes into consideration what is important to a person and to their family. A clear and engaging approach to discovering and addressing people’s priorities as dementia progresses is essential when guiding providers to deliver optimal support. This webinar will address foundational person-centered principles, and provide examples of discovery processes in planning for people who are living with dementia in a range of settings, including in the community.


Participants in the webinar will be able to:

  • Describe the differences between the foundational concepts of “important to” and “important for” in person-centered practices.
  • Identify one process to capture and record behavior as communication.
  • Recognize the purpose of discovery, management and everyday learning tools.

Meet the presenters


Leigh Ann Kingsbury

Leigh Ann Kingsbury, MPA, gerontologist, has been a student and practitioner of person-centered practices since the mid-1980s. Her experience includes providing community-based services to people with disabilities, and elders, many of whom communicate by using challenging actions and behavior. Her expertise includes supporting people with complex healthcare needs and using person-centered practices to support healthcare and end-of-life decision making. Kingsbury is a board member emeritus of The Learning Community for Person Centered Practices. She is a Learning Community Certified mentor trainer and a Certified Respecting Choices facilitator.

Shawn Terrell

Shawn Terrell, MS, MSW, health insurance specialist, has been working in the long term services and supports (LTSS) arena for more than 20 years. He is a health insurance specialist at the Administration for Community Living, where his primary focus is on developing person-centered planning policy, capacity and quality measurement and improvement in home- and community-based services (HCBS) systems. He is also engaged in a number of policy development and implementation activities including: self-directed HCBS, managed LTSS, LTSS access and Medicaid financing. Terrell is a Person-Centered Thinking trainer in Washington, DC.

Brian Van Buren

Brian Van Buren is an Alzheimer’s advocate and public speaker, a Board Member of the Western Carolina Chapter of the Alzheimer’s Association, and an Advisory Council Member for the Dementia Action Alliance. After his early onset Alzheimer’s diagnosis in 2015, he reimagined himself as an advocate. Being an Afro-American man, he felt he needed to give a face to the disease. He also feels a need to address marginalized populations such as the LGBTQ community.


April 2021 - Strengths-Based Planning for Worst-Case Scenarios

Strengths-Based Planning for Worst-Case Scenarios: The Role of Person-Centered Planning in Disaster Preparedness


Monday, April 26, 2021


The events of 2020 and early months of 2021have upended and disrupted everyone’s lives, but the impact on the lives of people with disabilities and older adults is particularly pronounced. It is now clear that planning ahead for emergencies is a must-do, particularly for those who rely on long-term services and supports for their daily wellbeing. What does person-centered planning for disasters look like? And how do we ensure that disaster responses are as person-centered as possible? In this panel, experts will describe what we have learned from recent events so we can be better equipped to respond to future disasters in a person-centered manner. Experts will also weigh in on the difference between personal planning and community planning, and why personal planning is never a substitute for comprehensive whole-community emergency preparedness, disaster response and recovery, and truly inclusive community resilience.

Meet the presenters


Korian Koko DeMont Thomas

Korian "Koko" DeMont Thomas was born and raised in Dallas, Texas, and identifies as Black DeafBlind. Thomas earned a Bachelor of Social Work degree specializing in HIV education and a Master of Public Administration, both from Gallaudet University, and a master’s degree in Rehabilitation Counseling from the University of North Texas. He has been an advocate of the DeafBlind community for more than 20 years.

Marcie Roth

Marcie Roth is Executive Director and Chief Executive Officer for the World Institute on Disability, one of the first global disability rights organizations founded and continually led by people with disabilities. Ms. Roth has been establishing and leading coalitions committed to operationalizing disability inclusion as an intersectional imperative for global social justice since 1995. Ms. Roth joined WID in 2019, bringing her lifelong commitment to advancing the rights of over one billion people with disabilities and expanding disability leadership locally, nationally and globally.

Marcia Montague

Marcia Montague is a Clinical Assistant Professor in Special Education at Texas A&M University. Her research and service interests focus on equity in access for individuals with disabilities, including family empowerment, disaster preparation, and disaster recovery. She has nine years of special education experience teaching students with a wide range of disabilities. Her efforts support partnerships with surrounding school districts and work with many Local Authorities on Intellectual and Developmental Disabilities (LIDDAs) in Texas.


Resources:

March 2021 - Person-Centered Practices in Schools

Person-Centered Practices in Schools: Lessons from New Jersey


Monday, March 29, 2021


Students, parents and educators from John F. Kennedy (JFK) School in Newark, NJ have been on a journey to explore the use of person-centered approaches in their school. They are one of many schools that are part of a statewide project called Person-Centered Approaches in Schools and Transition (PCAST) at Rutgers University. In this webinar we will hear from a dynamic panel at JFK that consists of students, parents, educators, and administrators. They will share their unique perspectives on using these approaches to improve plan facilitation, the IEP process, classroom implementation, and school culture and climate.

Opening remarks from Bill Freeman, the CSPD Coordinator at the New Jersey Department of Education, Office of Special Education. He develops and provides training and other forms of assistance to improve the educational services provided to students. Bill’s work focuses on improving the transition from school to adult life for students with disabilities. Prior to joining the NJDOE, Bill was a teacher, case manager, and school administrator where he focused on assisting students with disabilities to be successfully employed and fully engaged in all aspects of life upon graduation.

Meet the presenters


Jill Summers-Phillips

Jill Summers Phillips is the Principal of John F. Kennedy School in Newark Public Schools in New Jersey, which supports and educates students with disabilities at the middle and secondary level. She has been working in education since 1996 and in 2018 Mrs. Summers-Phillips was appointed Principal of John F. Kennedy School. At JFK she encourages the students and staff to embrace the “No Limits” motto which challenges everyone to push beyond any limits that this world may have set for them.

Michael Steinbruck

Michael Steinbruck, MA is a Senior Training & Consultation Specialist at The Boggs Center on Developmental Disabilities. Mr. Steinbruck’s programmatic focus is on developing the Person-Centered Approaches in Schools and Transition (PCAST) project. He provides training and technical assistance related to the development and delivery of person-centered thinking and planning, and works with schools on implementation of person-centered approaches and related organizational improvement efforts.

Lenya Morgan-Banner

Lenya Morgan-Banner is a servant of God, wife, mother, teacher, chaplain and advocate for children with special needs. She is a lifelong learner and holds a MA in Educational Administration. In 1997, her son Farad was diagnosed with ASD. Subsequently, she founded YANA-PGRS. A nonprofit organization providing cost free aid to families of children with special needs. Lenya currently works diligently to inspire breakthroughs in the way the world treats individuals with disabilities.

Ruby Frempong

Ruby Frempong is a senior at John F. Kennedy High School. She enjoys music, specifically 90’s hip-hop, pop and rhythm and blues. After graduation, Ruby plans to further her education by attending a two-year college with a focus on business and entrepreneurship.

Derick DJ Scott

Derick "DJ" Scott is a sophomore at John F. Kennedy School. He is an adventurous foodie who enjoys reading fictional titles with a unique story line. After graduation, DJ plans to attend college with a focus on genetic science, energy and space travel.

Raquel Hernandez

Raquel Hernandez is an LPN who currently works in a maternal fetal medicine department where she aides in monitoring high risk pregnancies. Raquel has been dedicating herself to the health care profession for the past 12 years. Raquel is a proud mother of 3 and is a strong advocate for her son DJ who is autistic. In Raquel’s free time, she enjoys spending time with family and friends, and is also the entrepreneur of Oshe Candles.

LaPrice Weatherington

LaPrice Weatherington M. Ed is a special education teacher for the Newark Board of Education. She is a co-author of #HELPME: A Parent’s Guide to Navigating the School Experience through the Eyes of Teachers and a member of the National Association for Special Education Teachers. Ms. Weatherington received her undergraduate degree from New Jersey City University and her graduate degree from Concordia University.


Resources:

February 2021 - Person-Centered Practices Self-Assessment

What Does a Person-Centered System Look Like? Introducing the NCAPPS Person-Centered Practices Self-Assessment


Thursday, February 11, 2021


In this webinar, the NCAPPS team will share a new tool to help leadership measure progress in developing a more person-centered system, the Person-Centered Practices Self-Assessment. The tool’s creator will provide an overview of the tool, and staff and people with lived experience from one state will share their experiences putting the tool to use.

Meet the presenters


Mary Lou Bourne

Mary Lou Bourne has been committed to learning about effective person centered practices. She designed and implemented a model for establishing Person Centered Service systems, including aligning person centered practices across all operations. She is a founder of The Learning Community for Person Centered Practice and developed the organization’s first PCP Mentor Trainer requirements. Her focus is leadership’s role in implementation of systemic person centered practices. She has developed organizational and statewide assessment tools for PCP, and supported PCP facilitators, Trainers and Mentor trainers in their learning journey.

Tanya RedRoad

Tanya RedRoad is the Parent Coordinator at the North Dakota Federation of Families for Children’s Mental Health. She has worked in the Fargo community for 15 years, previously through F/M Native American Center and Sacred Spirits. She is a mother of children with mental, emotional, and behavioral challenges. She feels honored to use her lived experience to be of value in all she does, and advocates for lived experience as a key factor in decision-making whenever she can.

Jake Anderson

Hi, my name is Jake Anderson, I am the president of the group “Advocates Leading Their Lives.” I have been part of self-advocacy for myself for over 4 years. I have been working hard with my job and work with people finding their voice in advocacy. I take pride in helping others find their place in self-advocacy.

Jake Reuter

Jake Reuter is the Money Follows the Person Grant Program Administrator with the Aging Services Division of the North Dakota Department of Human Services.

Ganesh Suryawanshi

Ganesh Suryawanshi was born and raised in India. He earned his master’s degree from the Massachusetts Institute of Technology, and works for a multi-national company as a software supervisor. He is also a passionate advocate for disability supports and services as a parent of a child with special needs. Ganesh, his wife and 2 children live in Fargo, North Dakota.


Resources:

January 2021 - Facilitating Person-Centered Planning

Doing With, Not Doing For:What it Takes to Facilitate Person-Centered Planning


Wednesday, January 06, 2021


People who facilitate person-centered planning play a key role in ensuring a person-centered system. For the planning process to be truly person-centered, it is critical that staff who facilitate person-centered planning possess the skills to: keep the focus on the person, cultivate connections, maximize choice and control, communicate clearly, and make sure the plan is implemented according to the person’s wishes. In this panel discussion, experts with a variety of backgrounds will share their experiences with person-centered planning and highlight the competencies they think are most important. This webinar is a companion to a recently published NCAPPS resource, Five Competency Domains for Staff Who Facilitate Person-Centered Planning.

Meet the presenters


Amy Pierce

Amy Pierce has been working in the Peer Movement in the state of Texas for over two decades. Amy currently is the Peer Services Implementation Field Liaison with Via Hope. Amy’s passion lies in supporting organizations in the development and implementation of peer programs. Amy is a peer and family member, with both mental health and addictions experience. She is a certified peer specialist facilitator, Advanced Level WRAP facilitator, ASIST trainer, and WHAM facilitator.

Carol Birtton Laws

Dr. Carol Bitton Laws is the Training Director for the Institute on Human Development and Disability where she instructs in, and coordinates, UGA's Disability Studies Certificate program. She is the founding Director of UGA's inclusive postsecondary education program: Destination Dawgs. Prior, she was nationally certified by the Learning Community for Person Centered Practices in Essential Lifestyle Planning and Person-Centered Thinking Training. She is a Fellow of the American Association for Intellectual and Developmental Disabilities.

Darien Todd

My name is Darien Todd. I am from Ellenwood Georgia. I went to Kennesaw state University. I graduated from the Academy for Inclusive Learning and Social Growth my major is public speaking. I am currently working at the Center for leadership and disability at Georgia State University as a self-advocate intern and an IPSE advocate intern. I'm also a my, voice my participation, my board trainer at the Center for leadership and disability I am also currently in the Georgia lend program at Georgia State University. I also have many skills like how to work PowerPoint, word document and I know how to make flyers. I have a Disability; it is called dyslexia. One of my strengths is working with others and I am a very hard worker.

Janis Tondora

Janis Tondora is an Associate Professor at the Yale Program for Recovery and Community Health. Her interests focus on the implementation and evaluation of supports that promote recovery and self-determination among individuals living with mental health challenges. Dr. Tondora is a family member of an individual with a brain injury, and she has a long history of working to promote the full inclusion of people with disabilities in all aspects of community life.


Resources:

November 2020 - Person-Centered Supports for People with Dementia

Person-Centered Supports for People with Dementia Living in the Community


Monday, November 30, 2020


Panelists will discuss their personal and professional experiences with dementia, along with individual, community, and system level approaches to make supports for people with dementia more person-centered. Participants will learn about the definition of person-centered thinking, planning, and practice, and will hear the panelists answer questions such as: What do person-centered dementia supports look like to you? What are community approaches to support people living with dementia in a person-centered way?

Meet the presenters


Cynthia Huling Hummel

Rev. Dr. Cynthia Huling Hummel, of Elmira, NY is a fierce advocate and a voice for those living with the dementia. Cynthia served on the National Council on Alzheimer’s Research, Care and Services representing the 5.8 million Americans living with dementia. She has been an Alzheimer’s research participant for 10 years. Cynthia currently serves as an advisor to several local, national and international organizations. An artist and author, she also sings in a country band. She will be moderating the discussion.

Brian Van Buren

Brian Van Buren is an Alzheimer’s advocate and public speaker, a Board Member of the Western Carolina Chapter of the Alzheimer’s Association, and an Advisory Council Member for the Dementia Action Alliance. After his early onset Alzheimer’s diagnosis in 2015, he reimagined himself as an advocate. Being an Afro-American man, he felt he needed to give a face to the disease. He also feels a need to address marginalized populations such as the LGBTQ community.

Cameron J. Camp

Cameron J. Camp, Ph.D., originally developed the adaptation of the Montessori method as an intervention for persons with dementia. He is a noted psychologist specializing in applied research in gerontology, and currently serves as Director of Research and Development for the Center for Applied Research in Dementia. He gives workshops internationally on cognitive and behavioral interventions to reduce challenging behaviors and increase the level of functioning and quality of life of persons with dementia.

Elias Rodriguez

Elias Rodriguez is a Registered Nurse of 8 years, and works as the Community Life Director at Rowntree Gardens Senior Living Community. His passion for comfort and best practice has made him an advocate for quality care. As an ambitious and motivated leader, he spends his days seeking the highest quality of life of employees and residents in the community.


Resources:

October 2020 - Student-Directed Individualized Education Plan

Student-Directed Individualized Education Plan (IEP): Bringing Person-Centered Practices to Schools and Beyond


Tuesday, October 27, 2020


The Individualized Education Program (IEP) is a cornerstone in planning and delivery of educational supports for students who are eligible for special education services. How can systems ensure that the IEP is truly person-centered? Ensuring that the student is directing and leading development and implementation of their IEP is a first step as the student develops their strengths and receives appropriate support. In this webinar, a panel of students, parents, educational consultant, and disability rights advocate will discuss strategies to make IEP meetings and implementation authentically person-centered and empowering for students and their families.

Meet the presenters


Sara

My name is Sara and I’m twenty-one years old. I have athetoid Cerebral Palsy. Athetoid Cerebral Palsy is a movement disorder caused by damage to the developing brain. This type of Cerebral Palsy is described by an unusual, unwilling movement. This inability to control muscle tone is what causes Cerebral Palsy symptoms. I am graduating from Cotting School this year. I love art and hope to study graphic design.

Elizabeth Bostic

Elizabeth (Beth) Bostic is the proud parent and humble servant of King James, a 20-year-old medically complex young man. She is a seasoned Special Education Advocate who is highly respected by parents, school administrators and other stakeholders across Massachusetts. She is a Board Member of the Federation for Children with Special Needs, LEND Adjunct Faculty at UMASS Medical, an Executive MBA candidate at Suffolk University, Charting the Life Course Ambassador and member of the Special Needs Advocacy Network.

Emily Berheide

Emily Berheide, OTR/L, M.Ed. is a Talent Discovery Specialist and Transition Consultant. She is passionate about helping youth discover their unique areas of talent and recognize their true potential! Emily works with a diverse population of youth in middle school, high school and transition programs. Her work focuses on engaging teachers and students in identifying students’ areas of intelligence and natural aptitudes and connecting those with work opportunities. Emily provides professional development trainings for schools, organizations and family groups on topics such as The Power of Having a Vision, Student-Directed IEP meetings, Discovering Talents and Supported Decision-Making.

Mary Abby

Mary Abby is a graduate student at the University of Massachusetts Boston studying to become a teacher of students with visual impairments. Her passion lies in pursuing equality, equity and diversity within the classroom. During her undergraduate time at Rhode Island College, she was the president of the Advocacy and Beyond Club, a student-run organization whose goal was to promote diversity and inclusion throughout the community. She is currently working as an assistive technology coordinator at In-Sight.

Lynn Waskelis

Lynn Waskelis is mother to Maggie; who attends Perkins School for the Blind, and who will transition from school to adult services in 2022. Maggie communicates using Augmentative and Alternative Communication, or AAC. She currently uses Touchchat on an iPad. Building from Perkins’ person-centered approach to the transition IEPs; Lynn has supported Maggie, and worked with her team to move toward a Maggie-driven IEP and transition to adult life.


Resources:

October 2020 - Facilitation for Choice and Control

Facilitation for Choice and Control: Person-Centered Planning's Best Kept Secret


Thursday, October 29, 2020


Person-centered planning facilitation can help to create a robust person-centered whole-life plan incorporating all resources that can be mobilized to support a person—not just paid services and supports. In this webinar, people with disabilities and their facilitators will share experiences with person-centered planning facilitation services. They will be joined by a national expert in disability services who will describe how person-centered planning facilitation services can be incorporated to enhance person-centered systems. This webinar complements a new report from NCAPPS – developed as part of our technical assistance work – that provides an overview of person-centered plan facilitation services in five states.

Meet the presenters


Jennifer Billington

Jennifer (Jen) Billington has been supporting people for 25 years. Jen completes formal planning using MAPs, Paths and Liberty Plan through waiver funding. Jen educates others, families, Guardians, Case Managers and DSPs on what is Important To and Important For each person as well as Power With versus Power Over. Jen has been providing training on person centered thinking to various organizations in Minnesota after her certification with The Learning Community.


Robin Cooper

Robin Cooper served as the Director of Technical Assistance for the National Association of State Directors of Developmental Disabilities Services from 1994 through 2020. Ms. Cooper provided technical assistance to all 50 states and the District of Columbia focusing developing and designing person-and family-centered Medicaid-financed home and community-based services. She also has experience of managing Wisconsin Medicaid HCBS waivers for persons with developmental disabilities, as well as working as a direct services provider and case manager. She holds bachelor and master's degrees from the University of Wisconsin-Madison.


Betsy Gadbois

Betsy Gadbois is the Director of Person-Centered Development with STAR services. She has been working in the field of developmental disabilities for 40 years. Betsy is a Person-Centered Thinking and Person-Centered Planning Trainer and Mentor and has delivered training nationally. She is passionate about people having positive control over lives that are meaningful to them.


Elizabeth Martin

Elizabeth Martin is an artist and small business owner. Elizabeth has a developmental disability and uses services and supports to manage her small business, build meaningful relationships, and volunteer in her community. Elizabeth is supported by a committed circle of support. With the help of an Independent Facilitator for the Person-Centered Planning process, Elizabeth has planned for her future to lead a self-determined life.


Jim Moore

Jim Moore is a Self-Advocate and public speaker from Minnesota. His motto is “Just grab life by the horns.” Jim will share his experiences of using Person-Centered Planning to move out of a group home and into his own apartment.


Jenny Weldon

Jenny Weldon is a vivacious young lady that loves being social. Jenny is very articulate and will tell anyone what she would like in her life and supports needed. Jenny has learned from medical professionals how to take care of her health needs. Jenny participated in person-centered planning to map these supports out. Jenny would like to share her experience in determining her supports and how person-centered planning can help others have their voice heard.


Resources:

August 2020 - Peer Support Across Disability

Exploring the Intersectionality of Peer Support and Person-Centered Planning across Disability


Wednesday, August 19, 2020


In this webinar, a diverse trio of peer supporters will share their perspectives on person-centered planning in the context of their lived experience. Presenters will discuss opportunities and challenges for blending and strengthening peer support and person-centered planning in diverse communities, and in physical, mental health, and intellectual and developmental disability services.

Meet the presenters


Martha Barbone

Martha Barbone served in the U.S. Air Force before being sidelined by a diagnosis of depression and PTSD. After several years including multiple hospitalizations, medications, and other treatments, she was introduced to peer support. This led to newfound hope and discovery of inner strength. Martha has worked as the director of CPS training and provided peer support on an inpatient unit, in a peer-run organization and facilitated groups in the VA. She currently is the Interim Director of Operations for iNAPS.

Ebony Flint

Ebony Flint is a Certified Peer Specialist, a Peer Group Facilitator for Alternatives to Suicide and Hearing Voices Network, and a Wellness Recovery Action Plan Facilitator for adults, young adults, and trauma survivors, working with populations both within the community and in hospital settings. She works for Advocates, Inc as the Peer Program Coordinator for The Living Room, a 24-hour, peer run crisis alternative in Massachusetts. Her passion for this work comes from being a parent of a child with special needs and having overcome traumatic experiences herself.

Sassy Outwater-Wright

Sassy Outwater-Wright is the Executive Director of the Massachusetts Association for the Blind and Visually Impaired. She has fifteen years of experience in the digital accessibility fields, consulting for small businesses, helping make products and services digitally accessible. Her background is in user experience and project management, and she specializes in multiple disability intersectionality.


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July 2020 - Tools and Approaches for COVID-19 and Beyond

Person-Centered Planning and the Pandemic - Tools and Approaches for COVID-19 and Beyond


Thursday, July 9, 2020, 2:00


The COVID-19 pandemic has brought into stark relief the critical importance of advance planning for both daily wellness and healthcare emergencies. In this interactive workshop, a panel of subject matter experts from across the long-term services and supports field, as well as people with lived experience, will offer tools and strategies that can be used to cope with life during a pandemic and plan in the event of a COVID-related hospitalization.

Meet the presenters


Michael Smull

Michael Smull is a consultant and trainer who has worked with people with disabilities labels for the past 48 years. He is the senior partner in Support Development Associates (www.sdaus.com) and the founder and Chair of The Learning Community for Person Centered Practices (www.tlcpcp.com). He is the co-developer of a person-centered thinking curricula and of essential lifestyle planning. Mr. Smull has provided training and consultation in 49 states, and 8 countries.

Amye Trefethen

Amye Trefethen works as the Family and Youth Services Coordinator for NAMI Missouri. Amye lives with bipolar disorder and has several family members who live with mental health challenges, as well as ASD. Amye enjoys spending time with her daughter Olivia, as well as her family and pets. She enjoys knitting, sewing and cooking and reading.

Chacku Mathai

Chacku Mathai is the Director for a SAMHSA Healthy Transitions Grant focused on supporting youth and young adults experiencing early psychosis through OnTrackNY and the Center for Practice Innovations at Columbia University. His personal experiences as an Indian-American young adult with disabling mental health and substance use challenges informs his effort to advocate for improved services, social conditions, and alternative supports in the community.

Jenny Turner

Jenny Turner is a member of the LifeCourse Nexus Team at the UMKC Institute for Human Development. She is the big sister of a sibling with IDD, and brings her personal and professional experience to support implementation of the Charting the LifeCourse framework for person and family centered policy, practice, and systems change.

Janis Tondora

Dr. Janis Tondora is an Associate Professor in the Yale School of Medicine’s Program for Recovery and Community Health. Dr. Tondora’s professional interests focus on the design, implementation, and evaluation of services that promote self-determination, recovery, and community inclusion among individuals living with serious behavioral health conditions.


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June 2020 - The PAE Attention Framework

The PAE Attention Framework: Understanding the Ingredients for Successful Stakeholder Engagement


Monday, June 15, 2020


Stakeholder engagement is essential for successful transformation to more person-centered practices. Stakeholders—including people with lived experience and their informal support networks, providers, and broader communities—all have invaluable insights that can inform redesign, ensure buy-in, and support implementation. Even so, stakeholder engagement is a stumbling block for many program administrators who are spearheading systems change efforts. This webinar will: 1) examine the common benefits and obstacles to meaningful stakeholder engagement, 2) review a simple framework to guide engagement activities, and 3) provide real-life examples of how this framework can build stakeholder trust and sustainable engagement strategies for success.

Meet the presenters


Erin McGaffigan

Dr. Erin McGaffigan has 22 years of experience in long-term services and supports for older adults and people with diverse disabilities. Her PAE Attention framework, developed as a result of her 2011 dissertation, informs her work with program administrators, researchers, advocates, health plan administrators, and people with lived experience to design and improve stakeholder engagement activities.


Anne Fracht

Anne Fracht has been advocating for herself and others for years and has received multiple awards for this work. She has worked at Advocates, Inc. as a Self-Advocacy Coordinator since 2009. Ms. Fracht also has sat on many advisory groups to inform program design and improvements, including Boards, Strategic Planning Workgroups, Human Rights committees, and more.


Keith Jones

Keith Jones President of SoulTouchin’ Experiences is an African American activist and entrepreneur with cerebral palsy. As a strong advocate for independent quality living in the community, Mr. Jones has participated actively in addressing various issues that people with disabilities face. These areas include housing, education, and voting access.


Bob Weir

Bob Weir is currently the Home and Community-Based Policy Analyst for the State of Oregon Department of Human Services Aging and People with Disabilities program. Mr. Weir’s experience includes work for people with developmental disabilities, adolescents in the Oregon State Hospital, and 31 years focused on seniors and people with physical disabilities.


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May 2020 - Ensuring Linguistic Competence

Ensuring Linguistic Competence in Person-Centered Practices and Systems
Wednesday, May 20, 2020
Person-centered practices require system capacity to respond effectively to the communication needs of diverse populations. Persons with limited English proficiency, those who have low literacy skills or are not literate either in English or their language of origin, persons with disabilities, those who struggle with health and mental health literacy, and persons who are deaf or hard of hearing all have unique communication needs in our health care and human services systems. The Georgetown University National Center for Cultural Competence puts forth a model for linguistic competence that addresses the interests and needs of these diverse populations within the contexts of the broad array of health and human services systems in the U.S. This webinar will: (a) take an in depth look at linguistic competence; (b) describe its foundational policies, structures, and practices with an emphasis on health care, mental health care, and disability and aging services; (c) offer the perspectives of persons with lived experience and the organizations that provide linguistically competent care, services, and supports; and (d) delineate the inseparable relationship between linguistic competence and person-centered practice. Participants will:

1. Differentiate linguistic competence from language access and implementation.

2. Cite legal mandates, requirements, and standards for language access and implementation.

3. Examine these concepts and mandates within the context of their respective roles and responsibilities.

Meet the presenters


Tawara Goode

Tawara Goode is the Director of the Georgetown University Center for Excellence in Developmental Disabilities. She is also the Director of the National Center for Cultural Competence with a mission to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity.


Mathew McCullough

Mathew McCullough is a Filipino American with developmental disabilities, he is currently the Director for the District of Columbia Office of Disability Rights, the Americans with Disabilities Act compliance office for the District Government. Mr. McCollough is recognized for his communications and training expertise in education, health care, diversity and sensitivity, cultural competency, and disability issues.


Octavio N. Martinez, Jr.

Octavio N. Martinez, Jr. MD, MPH, MBA, FAPA is executive director of the Hogg Foundation for Mental Health and Senior Associate Vice-President within the Division of Diversity and Community Engagement at The University of Texas at Austin. Additionally, he is a Professor of Psychiatry at the Dell Medical School and Clinical Professor at the Steve Hicks School of Social Work.


Yanira Cruz

Dr. Yanira Cruz is the President and CEO of the National Hispanic Council on Aging. She focuses on providing the Latino perspective on public health, older adult and caregiver issues to increase policy-maker and public understanding of the needs impacting vulnerable sectors of our society and to encourage the adoption of programs and policies that equitably serve everyone.



This webinar is the third in a four-part series that explores cultural and linguistic competence as it relates to person-centered thinking, planning, and practice. The series is presented by the Georgetown University National Center for Cultural Competence and the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), an initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services which help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.


Resources:

February 2020 - Building Capacity Using Family-Centered Approaches

Building Capacity Using Family-Centered Approaches to Promote the Best Life for Young Children with Disabilities: An Innovative Family-to-Family Program
Wednesday, February 26th
Family-centered practice is widely recognized as the best approach in building the capacity of families of young children with developmental delays or disabilities. However, like person-centered supports, challenges with implementation are recognized. Using co-design and peer work we have addressed this gap through the creation of novel approaches to family-centered planning, practices and supports to build family participation. In this webinar you will hear about:

• The global impact of this award-winning program

• Our evidence- and research-informed approaches

• What families think about these new approaches

• How other early intervention service providers have reflected on their family-centered practices and the steps they have taken to make improvements.


Meet the presenters


Annick Janson

Dr. Annick Janson is a New Zealand-based clinical psychologist and researcher, focusing on changing the disability sector through family collective leadership. She was awarded a Gallup International Positive Psychology Fellowship. Annick co-founded the evidence-based ‘Now and Next’ positive parenting program in Australia, Canada, New Zealand and Europe. She raises a young adult with special gifts.

Clayton Buffoni

Clayton Buffoni has a rather diverse past. Former Stage Writer and Director in the UK, Journalist in the Middle East and National Business Development Manager in the Australian and NZ wine industry. Currently, Business Development Consultant to Plumtree Learning. One part of a neurodivergent family of three, a member of the Reframing Disability Board and a Now and Next Alumni member.

Gareth Williams

Gareth Williams is currently the Director of Family and Children’s Services at the Canadian-based Kinsight Community Society. He’s interested in finding new ways to enhance family engagement and build family leadership in the early childhood intervention sector. When not working, he spends as much time outdoors as he can on his skis, bike or hiking boots.

Mohammed Hussaini

Mohammed Hussaini's whanau (family) consists of a very supportive wife and 3 amazing children. Though born in India, more than a decade ago we chose New Zealand as our home. Two years ago, our second child was diagnosed with Autism Spectrum Disorder, and we were one of the first families to be enrolled in Now and Next’s NZ program. I work as an IS Architect, and both my wife and I are trained as Now and Next peer facilitators.

Sylvana Mahmic

Sylvana Mahmic is CEO of Plumtree Australia with 28 years’ experience in the early childhood intervention field. She is co-creator of Now and Next , promotes peer work and has incubated two new peer led organisations. She is completing her PhD on individualised funding and supports her son to self-manage his funding.

Resources:

January 2020 - Meaningful Stakeholder Engagement

Meaningful Stakeholder Engagement: A Collaborative Approach to Programs for People with Intellectual and Development Disabilities and Their Families
Wednesday, January 22nd
Tennessee’s Employment and Community First CHOICES program, serving people with intellectual and developmental disabilities, was implemented in 2016 following robust engagement of the people and families who would be served by the program and extensive collaboration across state agencies and the advocacy community. The program emphasizes employment and community inclusion as the first and preferred option for people with intellectual and development disabilities and provides a broad array of services responding to the diverse needs shared by people and families. Participants in this webinar will learn: (1) The critical role that people and families played in proactively initiating conversations with state agencies (2) The partnership between state agencies to develop a comprehensive approach to service delivery (3) The importance of stakeholder engagement early in the program design phase, throughout implementation, and ongoing as the program continues to evolve to ensure services address stakeholder needs.

Meet the presenters


Eric Wilson

Eric Wilson is a self-advocate, participating in his community and workplace. He has been employed with Publix for ten years and is an all-around athlete in Special Olympics. His hobbies include photography, anything athletic and traveling. His favorite sports are power lifting, swimming and basketball.

Gina Wilson

Gina Wilson is the Director of the Early Learning Program at Waves, Inc., serving children from birth to three years who have a disability or developmental delay in Williamson County and six surrounding counties. She has been an advocate for 33 years, focusing on inclusion and empowerment.

Patti Killingsworth

Patti Killingsworth is the TennCare Assistant Commissioner and Chief of LTSS. She has worked in Medicaid for two decades, leading system redesign in multiple states. Her commitment is to transform systems to better serve individuals and families, and to bring their voice to bear in state policy and program decisions.

Wanda Willis

Wanda Willis has been the Executive Director of the Tennessee Council on Developmental Disabilities since 1991. The Council is a state agency established to improve disability policies and practice, educate policymakers and the public, and facilitate community collaboration to create lasting, positive change for Tennesseans with disabilities and their families.

Clancey Hopper

Clancey Hopper moved to Tennessee as a young adult for Project Opportunity, preparing her for many successful jobs including as tour guide at Nashville’s Grand Ole Opry. Clancey serves on the TN Council on Developmental Disabilities, the Board of Directors for Prospect, Inc. and the Board of Trustees for the National Williams Syndrome Association.

Jordan Allen

Jordan Allen is the Deputy Commissioner of Program Operations for the TN Department of Intellectual and Developmental Disabilities. His career experience spans nearly 25 years in multiple state service delivery systems. Under his leadership, Deputy Commissioner Allen has championed and implemented community integration strategies, vocational training, integrated employment supports and enabling technology for persons with disabilities that have gained national recognition.

Resources:

December 2019 - Finding the Balance

Finding the Balance: Person-Centered Supports that Honor Safety and Dignity of Risk
Tuesday, December 17th
Person-centered supports must ensure that people have opportunities to make informed choices and to be supported in managing the risks that come with some decisions. Support providers have a direct role in helping people to live lives of their choosing and often face the challenge of balancing the individual’s choice and what is their ‘duty of care’. Participants in this webinar will 1) hear from people with disabilities about their experience in planning, navigating concerns about well-being, and seeking the ‘dignity of risk’, 2) learn from providers of supports about requirements, challenges, and successes in the delivery of quality person-centered supports that considers health and safety while honoring a person's right to make decisions that may not always be in their best interest, 3) learn about training available for direct support providers that will equip them with the skills and strategies to help manage health and safety concerns in a person-centered way.

Meet the presenters


John Raffaele

John Raffaele is the Director of Educational Services at the National Alliance for Direct Support Professionals. John has Master of Social Work Degree, and is a highly experienced professional adult educator, group worker and facilitator. John's education is from Yeshiva University in New York City and The State University of New York at New Paltz.

Marian Frattarola-Saulino

Marian Frattarola-Saulino is the Co-Founder and CEO of Values Into Action (VIA). The VIA family of organizations includes the first Supports Brokerage in Pennsylvania and one of the original Support Coordination Agencies in New Jersey. She presents internationally on co-production as a fundamental right, based on experience from her current operational work. Marian is also a co-founder of The Alliance for Citizen Directed Supports.

Michelle Murphy

Michelle Murphy is a Staff Development Specialist with the Arc Mid-Hudson in Kingston, NY. She is a credentialed direct support professional (DSP) with 15 years of experience in various roles. Michelle currently oversees the NADSP E-Badge Academy at the Arc Mid-Hudson. Michelle is known for her vibrant personality, her passion for employee self-care, and empowering DSPs to be their best selves while providing quality supports.

Nicole LeBlanc

Nicole LeBlanc has 12 years of experience in disability policy field. Dignity of risk is her passion, and she has created a booklet on disability employment policy through a public policy internship. She currently works as the Person-Centered Advisory and Leadership Group (PAL) coordinator for the NCAPPS. Her Motto is “Control Your Own Destiny, or Someone Else Will.”

Chester Finn

Chester Finn is currently employed by the New York State Office for People with Developmental Disabilities (NYS OPWDD). He has served three terms as National President for Self-Advocates Becoming Empowered (SABE) and is also an advisor and former president for the Self-Advocacy Association of New York State (SANYS).

Resources:

November 2019 - Trauma-Informed Person-Centered Thinking and Support

Trauma-Informed Person-Centered Thinking and Support
Monday, November 18th

To engage in person-centered practices, including person-centered planning, it is essential to see the whole person. This whole person view must include acknowledgment and consideration of a person’s life experiences, which may – and often do – include experiences of trauma. Person-centered practices and trauma-informed approaches share key values, including collaboration, mutual trust, informed choice, and empowerment. However, we lack the tools to apply trauma-informed principles to the person-centered planning process, and to intentionally engage in trauma-informed person-centered practices. This webinar will explore the intersection of trauma and person-centered thinking, planning, and practice. It will emphasize actionable steps people can take to ensure that we consider trauma when we engage in person-centered thinking, planning, and practices.

Meet the presenters


Karyn Harvey

Karyn Harvey has a Ph.D. from the University of Maryland In Applied Developmental Psychology. She has worked in the field of intellectual disabilities as a psychologist for over 30 years and has published 2 books on the topic. Her third book, Trauma and Healing, will be coming out in the beginning of 2020.

Cathy Cave

Cathy Cave, a founding partner of Inspired Vision, LLC, has over 30 years of experience in culture, inclusion and disparities elimination, trauma-informed services and supports, peer support, and strength-based approaches. She uses her survivor, family, community, provider and administrative perspectives to facilitate organizational change at local, state and national levels.

Tanya M. Richmond

Tanya M. Richmond, MSW, LCSW, a partner with Support Development Associates, has over 30 years of experience working as a licensed clinical social worker. She has diverse expertise in direct practice and has directed programmatic and evaluative agencies in community service agencies, community college, and Research One University settings.

Aimee Ortiz-Day

Aimee Ortiz-Day is the mother of two teenagers who are adventurous, funny, kind and have a disability. She joined the Center on Disability and Development at Texas A&M University in 2014 and manages several programs that support person centered practices, increase self-advocacy and promote the inclusion of individuals with disabilities in their communities.

Michael Smull

Michael Smull has been working with people with disabilities since 1972. Michael is the Chair of The Learning Community for Person Centered Practices (TLC-PCP) and a senior partner in Support Development Associates (SDA). He is the co-developer of Essential Lifestyle Planning and has worked in 48 states and eight countries. He has helped people leave institutions in the US and the UK.

Resources:

October 2019 - Cultural Competence

Cultural Competence: What it Means for Person-Centered Thinking, Planning, & Practice
Tuesday, October 29th

Cultural competence is widely recognized as essential to the delivery of high quality and effective services and supports by policy makers, health, mental health and social service professionals, educators, and researchers. There is a solid base of evidence that cultural competence improves access, utilization, outcomes, and satisfaction in health and human service delivery systems. While this evidence is compelling, many organizations have struggled to integrate cultural competence into their person-centered thinking, planning, and practice. This webinar will: (1) Describe a framework for cultural competence and at the individual and organizations levels; (2) Provide a “real life” example of an organization that values and practices cultural competence; and (3) Highlight personal narratives of individuals who will share what culturally competent services mean to them; and (4) Describe how cultural competence and person-centered thinking and practice are integrally linked.

Meet the presenters


Tawara Goode

Tawara Goode is Director of the Georgetown University Center for Excellence in Developmental Disabilities. She is also the Director of the National Center for Cultural Competence with a mission to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity.

Brenda Liz Muñoz

Brenda Liz Muñoz is an Executive Committee Member with the Georgia Council on Developmental Disabilities and a Community Services Specialist in the Center for Leadership in Disability at Georgia State University. She co-leads a diverse, multi-sector consortium of professionals, families, and allies which focuses on: capacity building and collective impact; Latino parent education and leadership training; and advocacy in policy and systems of care. She is a proud parent of a nonverbal young man who lives with severe to profound autism spectrum disorders.

Christie Carter

Christie Carter is the Older Adult Program Coordinator at the Milwaukee LGBT Community Center. She has a Masters of Education with a focus on instructional design and is part of both the LGBT and disability communities. She uses her personal experiences in both of these groups to educate policymakers and advocate for the older adults she works with every day.


Diana Autin

Diana Autin is Co-Director of the SPAN Parent Advocacy Network, New Jersey's "one-stop" for families, and the FV Leadership in Family Professional Partnerships. She directs the National Center for Parent Leadership, Advocacy, and Community Empowerment (National PLACE), which advocates to enhance the voice of diverse families and family-led organizations at decision-making tables. She is a of Cajun and Native American heritage and is the adoptive mother of four adult children from diverse cultures – she is deeply committed to cultural reciprocity and language access.

Lorraine Davis

Lorraine Davis is a member of the Sisseton-Wahpeton Sioux Tribe, and the Founder and Executive Director of the Native American Development Center, a Native American-governed nonprofit located in Bismarck, ND. The center’s person and family-centered model addresses socio-cultural and economic challenges that inhibit Native American’s ability to improve their lives for themselves and their children. It was designed in response to the cultural dissonance Lorraine encountered upon first moving to Bismarck from a reservation as a single-parent when she had no money and an alcohol addiction. She is a current Ed.D student in Education Leadership and Administration.

Resources:


This webinar is the second in a four-part series that explores cultural and linguistic competence as it relates to person-centered thinking, planning, and practice. The series is presented by the Georgetown University National Center for Cultural Competence and the National Center on Advancing Person-Centered Thinking, Planning, and Practice, NCAPPS is a new initiative from the Administration for Community Living and the Centers for Medicare & Medicaid Services to help States, Tribes, and Territories to implement person-centered practices. NCAPPS webinars are open to the public, and are geared toward human services administrators, providers, and people who use long-term services and supports. All NCAPPS webinars will be recorded and archived at https://ncapps.acl.gov.

September 2019 - Microboards 101

Microboards 101: An Introduction to a Person-Centered Solution Offering Full Accountability, Active Community Support, and Lifelong Continuity of Care
Monday, September 16th

Microboards are tiny nonprofit corporations that are custom-designed to serve one person. Because of this singular focus, person-centered planning and service design is ‘baked-in’ to the model. And it offers an ability to adapt quickly to someone's changing needs. Each Microboard is part of a larger personal circle of citizen-based support, connection, and companionship, offering a base for lifelong continuity of care, advocacy, and creative problem-solving. Nearly 2,000 Microboards are operating in cities, small towns, and rural areas in the US and Canada. They can be implemented using existing state structures and Medicaid regulations, so states can seamlessly incorporate them into existing procedures for approving and contracting with new providers. In this webinar, we’ll hear from the originator of the model. We’ll also hear from leaders of two active Microboards (one in Wisconsin and one in Georgia) who’ll describe how they’re using the model to promote a good life for the person at the center.

Meet the presenters


David Wetherow

David Wetherow is an internationally recognized leader in community living and self-directed supports. David and his wife Faye invented the Microboard model and developed North America’s first inclusive housing cooperative, the first family-and consumer-governed service cooperative, and a mobile lending library of alternative communications equipment and trainings. David and Faye shared their lives with a beloved adopted daughter who lived with significant communication, mobility, and health challenges until her passing in 2004.

Stuart Rabin

Stuart Rabin heads a Microboard in southeastern Wisconsin. Having the support of a Microboard has provided a quality of life to him unequaled under other models. Stuart may not speak with words but his demeanor touches people’s hearts. Most days you will find him out of the house, seeing, doing, and exploring. His hobbies are riding rollercoasters and swimming in the pool whenever possible. Stuart’s mother, Anne, is fortunate to be able to share his story to encourage others in supporting the person to be the center of focus. Anne is a member of the Wisconsin Microboard Association, an advocate for the caregiving workforce and supported self-direction.

Christopher Hunnicutt

Christopher Hunnicutt was born and raised in DeKalb County, Georgia where he participated in the inclusive public education system. In 2011, he graduated from the first cohort of the inclusive post-secondary education program at Kennesaw State University. Currently, Chris lives in a condo community with his roommate and keeps busy with three part-time jobs. Chris established his Microboard in 2014 and holds regular meetings to review his PATH with community members who are interested in providing support and guidance for his self-actualization. Christopher has presented to audiences at local, state, and national venues. Chris’ self-advocacy provides encouragement to empower the voices of others.

Resources:

August 2019 - Considering Brain Injury

Considering Brain Injury: Why Being Brain Injury Informed is a Critical Component of Person-Centered Thinking, Planning, and Practice
August 12th

Traumatic brain injury is a leading cause of death and disability for all age groups in America. This, often, hidden disability is commonly found to be a co-occurring condition among individuals living with mental health challenges, substance use related disorders and other disabling conditions. As a result, individuals with brain injury are often served by programs primarily focused on intellectual and developmental disabilities, aging and other populations receiving long-term services and supports. Those engaging in person-centered thinking, planning, and practice in human service systems need to be equipped with tools to consistently and appropriately work with those who have a history of brain injury. This webinar features presenters from the National Association of State Head Injury Administrators (NASHIA) and two individuals with lived experience of brain injury. The webinar’s key points of focus will include how brain injury considerations and person-centered practices differ from plans supporting other disability populations; and accommodations and strategies for addressing brain injury-related cognitive, behavioral and social issues with regard to person-centered plan development.

Meet the presenters


Anastasia Edmonston

Anastasia Edmonston MS CRC, has worked in the field of rehabilitation services for individuals with traumatic and acquired brain injuries for over 30 years in both inpatient and outpatient services, as a case manager, program coordinator, advocate and vocational rehabilitation counselor. She provides training on the topics of traumatic brain injury, person centered thinking and planning to professionals who work in the fields of mental health and addiction (with a focus on the link between addiction and brain injury), and aging services.

Kelly Lang

Kelly Lang and two of her daughters were involved in a horrific car accident in November 2001. This left her daughter Olivia with a severe traumatic brain injury. A few months later Kelly was diagnosed with a mild traumatic brain injury. Kelly’s advocacy career began once Olivia arrived in the acute care setting and has continued for the past 17 years. She serves on numerous boards and advisory councils and has spoken to brain injury support groups and other professionals regarding her family’s experience with brain injury, including the successes and difficulties accessing services.

Anne Forrest

Anne Forrest is a PhD Economist and an early adopter of technology. After she had a mild traumatic brain injury following a car accident in 1997, she became an international speaker and advocate for people recovering from brain injury. She has brought her message of concussion recovery, neuroplasticity and cognitively-accessible technology to survivors and their families, professionals, and lawmakers. Anne's website (A Plastic Brain | Awareness, Hope, Advocacy) was designed with team through the Knowbility Open Air contest for people like her with visual/cognitive issues following concussion.

Resources:

July 2019 - Pieces of the Same Puzzle

Pieces of the Same Puzzle: The Role of Culture in Person-Centered Thinking, Planning, and Practice
Tuesday July 9th

The movements to advance person-centered thinking and cultural competence have evolved along parallel tracks. This dichotomy is evident not only in the literature about person-centered thinking but also in policy and practice. Every person is a cultural being and has multiple cultural identities. Some people experience intersectionality due to societally imposed discrimination because of their memberships in multiple marginalized social groups. Yet person-centered thinking, planning, and practice have been slow to assemble the “pieces of the puzzle” that link the integral role of culture in the design, delivery, and evaluation of services and supports for this nation’s diverse populations. This webinar will take an in-depth look at culture, its multiple dimensions, and the essential role it plays among states, territories, and tribal nations seeking to align their values and policies with person-centered thinking, planning, and practice in health and human services. It will also feature the role of culture in services and supports that are preferred and needed from the perspective of those with lived experience.

Participants will learn to:

  1. Define and differentiate culture and cultural diversity
  2. Compare the concepts of multiple cultural identities and intersectionality and reflect on their implications for the populations served in their state
  3. Review current and emergent demographic trends in the United States
  4. Examine the Convergence of Cultural Contexts Framework and its relevance for systems of services and supports within states, territories, and tribal nations
  5. List at least 5 roles that culture plays in person-centered thinking, planning, and practice
  6. Listen to and reflect on the importance of addressing culture based on the lived experience of individuals receiving services and supports

Meet the presenters


Tawara Goode

Tawara Goode is Director of the Georgetown University Center for Excellence in Developmental Disabilities and the National Center for Cultural Competence (NCCC). The mission of the NCCC is to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity.

Andy Arias

Andy Arias has worked as a System Change Advocate and Program Manager for Orange County & Los Angeles for over seven years. He is member of many boards and commissions related to creating greater visibility and advancement for diverse communities, especially the disability community. Andy’s expertise extends to Federal government and corporate levels. His goal is to marry his policy work with his work in the entertainment industry to create a systemic lasting change.

Chacku Mathai

Chacku Mathai is an Indian-American, born in Kuwait, who became involved in mental health and addiction recovery advocacy when he was only 15 years old. Chacku’s personal experiences with racism and xenophobia related trauma, suicide and disabling mental health and substance use challenges as a youth and young adult launched Chacku and his family towards a number of efforts to advocate for alternative supports, equity, and inclusion in the community.

This webinar is the first in a four-part series presented by the Georgetown University National Center for Cultural Competence and NCAPPS exploring cultural and linguistic competence as it relates to person-centered thinking, planning, and practice.

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