NCAPPS Shorts: Wisdom During the Pandemic

NCAPPS has asked its subject matter experts to reflect on the importance of person-centered practices in times of crisis. Check out the videos below to hear members of our Person-Centered Advisory and Leadership Group and other NCAPPS experts on:

  • What do person-centered thinking, planning, and practice look like in time of crisis?
  • How do we hold on to - and even promote – person-centered thinking, planning, and practice at this time?
  • How do we balance collective, public health with person-centered, individual well-being?
  • What lessons we can apply from person-centered thinking, planning, and practice to get through this time of pandemic?

Person-Centered Practice as Anchor and Beacon: Pandemic Wisdom from the NCAPPS Community

    The NCAPPS team and partners collaborated on a publication exploring the themes from this video series, Person-Centered Practice as Anchor and Beacon: Pandemic Wisdom from the NCAPPS Community. Read the article in the open source Developmental Disabilities Network Journal.

I Became the Person Who Needed Support

    “The importance of feeling connected, the importance of being able to figure out you know, what's next. How can we have some kind of consistency? That is what person-centered practices did for my family. As I laid in the hospital, those are the concepts that it helped me.”

    NCAPPS PAL group member Anntionete McNutt-Morgan shares her personal experience of how person-centered principles helped her and her family.

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Concerned About the Trauma of Isolation

    “I am concerned about what we are doing to help people connect in ways that will soften the effects of the trauma of COVID.”

    NCAPPS collaborator Karyn Harvey calls us to an action to soften the effects of trauma as we navigate the pandemic.

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Problem Solving During A Pandemic

    “Person-centered planning is an ongoing problem-solving process”

    NCAPPS PAL Group Member Kelly Lang shares how person-centered planning has been helping her family to problem-solve.

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We’re Sacrificing the Person to Save the Body

    “There are people with advanced stages of dementia living in nursing homes and memory care units right now, that are being denied their basic human rights, in order to keep them alive. But while we're trying so desperately to keep these people alive, we are depriving them of their choice, of their autonomy.”

    In this video, an NCAPPS PAL group member Diana Blackwelder reminds us that giving choice and autonomy to people is an important element of person-centered practice.

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Being Person-Centered is Not Always Comfortable

    "If you’re culturally uncomfortable to have certain conversations, can you truly be person-centered?”

    NCAPPS collaborator Eric Washington encourages us to stay together and have uncomfortable conversations in light of the COVID-19 pandemic and racial injustice.

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Planning Can Be A Beacon

    “… when I focused on how do I meet the needs that I have, and what can I control, then I felt better… I can use person-centered planning strategies to look at the important things to me in my life, and how do I get those needs met.”

    Carole Starr, an NCAPPS collaborator and a brain injury survivor, shares how person-centered planning strategies have been helpful for her in navigating the time of pandemic.

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Falling Back on Person-Centeredness

    “A lot of times people think a person-centered plan is something that we would just do if we had enough time, or something that we would do if we just want to think about the future. But the reality is that [person-centered planning] helps ground us in the day-to-day problem solving we can make about anything that's happening in our lives.”

    Sheli Reynolds, who directs the LifeCourse Nexus at the University of Missouri Kansas City Institute for Human Development reminds us to fall back on the person-centeredness as we navigate through the pandemic.

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If Not Now, Then When?

    “This opportunity must become the mandate to shift the system.”

    Marian Frattarola-Saulino, who is the CEO and co-founder of Values Into Action, and a co-founder and chair of The Alliance for Citizen Directed Supports, urges everyone to take the pandemic as an opportunity to embrace and adopt person-directed, family-centered supports.

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Person-Centeredness is About Empathy

    "… empathy that comes with person-centered thinking really puts us in a position to develop strategies for each person that provide the kind of sustenance and reassurance that they need during this period”

    “person-centered practices aren't "one-and-done"; people needs are going to change. We don't know how long this isolation is going to continue, but I'm convinced that people needs are going to change as well as time goes on. So, person-centered planning, thinking, practice is even more crucial …”

    Bevin Croft, co-director of NCAPPS, interviews Valerie Bradley, co-founder and president emerita of Human Services Research Institute, to learn more about what coronavirus might mean for person-centered supports now and into the future.
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COVID-19 and Behaviorial Health

    "… COVID-19 can actually serve as a catalyst to move people forward in their recovery as they connect with people in new ways and discover internal resources"

    Janis Tondora from the Yale University School of Medicine talks about what Behavioral Health professionals are seeing and thinking about right now. While she acknowledges the difficulties of the time, she sees an opportunity for people struggling with behavioral health issues to discover their internal resources and strategies.

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A Provider's Perspective

    "I would encourage anyone to really, really look at that person-centered planning process."

    Having practiced person-centered approach for decades has better equipped Minds Matter to navigate the challenges presented by the pandemic. Watch the video to learn from its founder Janet Williams’ experience.

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Why We Need Self-Direction

    "“In this period, and this pandemic, self-direction may be the answer we're looking for."

    Kevin Mahoney, a professor emeritus at the Boston College School of Social Work, explains benefits of self-direction.

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Caregivers and the Collective

    "... what it makes me think of is how we can all take taking care of each other to be a collective and shared responsibility, because it's only through taking on that as a collective responsibility that we can actually attend to people's individual needs, whether the needs of our care workers and our support workers and our aides and our attendants, or the needs of those who are receiving those services and that care."

    NCAPPS PAL group member Lydia X. Z. Brown shares the importance of collective responsibility and why it is critical to meet individual needs.

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We are the Collective

    "It would be a mistake to pretend like collective care and person-centered care are a big dichotomy or somehow in opposition to one another because the collective is made out of all of us. The collective loses something when it loses any one of its members, so we can't be forgetting right now that every one of those members matters."

    Shain Neumeier, attorney and disability rights advocate, reframes the idea of the collective and reminds us that every individual is valuable and worthy of care.

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The Pandemic is an Opportunity to Improve Person-Centered Supports

    "I see this public health crisis as an opportunity to move away from segregated settings, to smaller, more individualized services and supports."

    Alixe Bonardi, co-director of NCAPPS, speaks with Nicole Leblanc, the coordinator for NCAPPS Person-Centered Advisory and Leadership group, to learn more about what she thinks this pandemic means for people with disabilities and person-centered practices.

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Stay Connected and Stay Healthy

    "We don't have to always offer a quick solution when we can sit and listen. Listen to the fears. Listen to the frustration and listen to the heartache of separation. And also listen to the joy of connection. Stay well and stay connected."

    NCAPPS PAL group member Martha Barbone offers us some practical tips and encouragements on how we can exercise person-centeredness when we share information and support one another. Most importantly, she encourages us to listen, so we can stay well and stay connected.

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