The resources linked below are presented with a brief summary, an indication of the content areas and links to access the source documents. Inclusion of the resource on this page does not imply a specific endorsement of any one approach to ensure that supports and services are person-centered.
This resource page will be regularly updated. To suggest additional documents, please email NCAPPS@hsri.org
Education and Awareness
Technical Assistance & Training
Policy & Research
Quality & Service Delivery
Michael Smull, partner at Support Development Associates and NCAPPS faculty member, describes nine components that work in concert to make up a person-centered human services system. This is the first in a series of short pieces authored by Michael Smull on person-centered systems change.
NCAPPS subject matter experts have created a tool – the Health Care Person-Centered Profile – to communicate a person’s wants and needs if they are hospitalized without the direct support of their caregivers, family, neighbors, or friends.
The tool has two pages. The first page can be used to capture brief and vital information about the person’s health status. The second page contains the Person-Centered Profile, a one-page brief description of the things that can assist medical staff in providing more tailored and person-centered care. You can use the accompanying instructions to fill out the template for yourself, someone you love, or someone you’re caring for. We have also created examples that show how the tool can be used by people with a range of different backgrounds and concerns.
This paper explores themes from a series of short videos created by members of the NCAPPS community in the early days of the pandemic. The themes are organized in four levels:
The paper discusses both specific factors within each of the levels and the complex interplay between each of the factors at four levels.
This presentation and accompanying brief provide an overview of racial disparities in access to health care broadly, and recognition and treatment of brain injury more specifically. NCAPPS Brain Injury Learning Collaborative faculty Monica Lichi and Eric Washington discuss the importance of understanding implicit biases, and engaging in self-advocacy and collaboration.
This paper summarizes and analyzes seven common themes that emerged from the technical assistance applications at the inception of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), providing a unique window into human service system administrators' priorities for achieving more person-centered human service systems and the conditions that may promote or hinder systems change.
In 2012, Janis Tondora and colleagues authored an article outlining the Top Ten Concerns about Person-Centered Care Planning in Mental Health Systems. In this brief, Martha Barbone, a member of the NCAPPS Person-Centered Advisory and Leadership Group, describes the role peer support can play in addressing each concern.
NCAPPS Person-Centered Advisory (PAL) group coordinator, Nicole LeBlanc, shares her reflections on how the COVID-19 pandemic has been impacting the disability community, and prompts us to take this crisis as an opportunity for improvement and innovation.
Training competent direct support professionals (DSPs) and maintaining the DSP workforce can greatly influence quality of life for people with disabilities who receive long-term services and supports. This issue brief prepared by Valerie Bradley discusses considerations for ensuring a training regimen will increase direct support staff expertise and improve the quality of services and supports.
This resource from the Centers for Medicare & Medicaid Services is intended for the state Medicaid agency staff to provide background information, resources, and promising practices that support state efforts to rebalance Medicaid long-term services and supports (LTSS) in favor of home and community-based services (HCBS).
This resource, which builds from foundational approaches to person-centered planning and the 2020 National Quality Forum Person-Centered Planning and Practice Final Report, describes five skill areas, or domains, that facilitators should possess to support a fully person-centered planning process: A. Strengths-Based, Culturally Informed, Whole Person-Focused; B. Cultivating Connections Inside the System and Out; C. Rights, Choice, and Control; D. Partnership, Teamwork, Communication, and Facilitation; and E. Documentation, Implementation, and Monitoring.
Developed as part of NCAPPS technical assistance, this Self-Assessment is designed to help leadership at human service agencies in States, Tribes, and Territories to measure their progress in developing a more person-centered system. It contains questions about observable practices across eight system domains: Leadership; Person-Centered Culture; Eligibility & Service Access; Person-Centered Service Planning & Monitoring; Finance; Workforce Capacity & Capabilities; Collaboration & Partnership; and Quality & Innovation.
NCAPPS PAL Group Coordinator, Nicole Leblanc, has a new publication which we are releasing on the NCAPPS website: “Dignity of Risk and Person-Centered Planning During COVID-19: Balancing Risk and Embracing Opportunity in the Face of Grave Challenges”. Check it out for a thoughtful discussion of her experiences during the COVID-19 pandemic and how this relates to risk and living a life that includes dignity of risk. “It might take some creativity, but I think people can still be doing things that allow them to take chances and grow. This is a good time to explore interests and try learning new skills.”
Although there are now a range of strong national definitions of person-centered thinking, planning, and practice, many state human service agencies find it important to develop their own local definitions for use in policy statements and implementation protocols. This environmental scan serves as a starting point for state, tribal, and territory human service agencies as they operationalize person-centered approaches in their local contexts.
Description: In July 2020, the National Quality Forum completed a report that drew upon multi-stakeholder expertise to refine the definition of Person Centered Planning, establish a list of core competencies for person-centered-planning facilitation, and help establish a framework for measuring quality in person centered planning.
This best practice guide is designed to assist human service systems to fully and effectively include people who receive services in system planning and improvement efforts. It is relevant for all systems that support older adults and people with disabilities and was created as part of NCAPPS technical assistance activities.
Asset Mapping is process of mapping out (e.g., with visuals or lists) stakeholders and how they are already engaged by an agency and/or its allies. Developing an Asset Map provides the opportunity to identify existing groups, communication practices, trusted relationships, and products to springboard from as opposed to starting the engagement process from scratch. This toolkit contains a variety of resources – frequently asked questions, a glossary of terms, step-by-step instructions, facilitator tools, and example Asset Maps and Engagement Plans – to support human service agencies in their stakeholder engagement efforts.
This resource shares the lessons from the journeys of members of the Traumatic Brain Injury (TBI) Advisory and Leadership Group (TAL-Group) as brain injury survivor who are active in advocacy work. The TAL-Group guides the priorities and assists with the activities of the TBI Technical Assistance and Resource Center (TBI-TARC).
This overview of person-centered plan facilitation services explores the experience of states that have specifically included plan facilitators in their HCBS waivers, the circumstance under which the states deploy plan facilitators, the rates paid, and training requirements.
The SCAN Foundation's policy brief on system change towards a person-centered system for older adults and people with disabilities includes guidance for administrators and others.
ACL, with substantial stakeholder input, developed these principles for supporting older adults and people with disabilities during serious illness.
This report briefly describes methods and efforts states and agencies can use to become more person-centered.
This article in The Gerontologist examines the history, components, and impact of person-centered care practices specifically among people with dementia.
This website connects the reader to the Substance Abuse and Mental Health Services Administration working definition of recovery and principles of recovery.
A team of experts developed this article that provides the evidence base to support a definition of person-centered care and its essential elements.
To guide the technical assistance provided as part of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), the Human Services Research Institute prepared a national overview of person-centered principles across aging and disability systems, including mental health systems.
To guide the technical assistance provided as part of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), the Human Services Research Institute conducted a national review of indicators that may be used to assess person-centered principles in aging and disability systems, including mental health systems.
This resource, created as part of NCAPPS technical assistance, provides an annotated summary description of foundational resources and approaches for person-centered thinking, planning, and practice.
This resource provides tips on making the most of lived experience when people with brain injury and professionals are working together on a team.
Nicole LeBlanc, coordinator of the Person-Centered Advisory and Leadership Group for NCAPPS worked with the NCAPPS team to develop a lessons-learned guide to help make virtual meetings more accessible for all.