The resources linked below are presented with a brief summary, an indication of the content areas and links to access the source documents. Inclusion of the resource on this page does not imply a specific endorsement of any one approach to ensure that supports and services are person-centered.

This resource page will be regularly updated. To suggest additional documents, please email NCAPPS@hsri.org

Click on a Topic area below to view related resources

Education and Awareness

Education and Awareness

Technical Assistance

Technical Assistance & Training

Policy and Research

Policy & Research

Quality & Service Delivery

Quality & Service Delivery

Human Services Provider Agency Toolkit for Self-Determination

Jeffery Keilson, Valerie Bradley, Jami Petner-Arrey, and Jane Lawrence

Self-Determination is the right of all people to participate in and approve of the design of their personal support systems, to fully engage in their communities, and to make choices in their daily lives. Though the ultimate exercise of self-determination is having people direct their own supports, not every individual receiving Home and Community-Based Services (HCBS) may be eligible for or interested in the self-directed services available where they live. Provider-directed services, such as community-based group homes, structured employment, day programs, or shared living will continue to be part of the array of options available to people needing support. Human services providers, however, can infuse self-determination in every aspect of service delivery by helping people exert greater control over their environments and make choices about their everyday lives. Created through NCAPPS technical assistance, this guide contains strategies and resources to assist HCBS providers in championing self-determination among the people they serve.

Autism Acceptance

Nicole LeBlanc

Nicole LeBlanc reflects on the need to emphasize strengths, not just weaknesses or cures, when portraying kids and adults with autism.

How to Expand Supported Decision-Making and Increase Informed Choices

Michael Kendrick, Valerie Bradley and Jami Petner-Arrey

To reduce the restrictions on choice and rights that are the outcomes of guardianship, a national movement is growing to advance supported decision-making (SDM) as an alternative to guardianship. The purpose of this publication is to introduce SDM and to suggest ways that more people can benefit by relying on supporters to help make decisions and to reduce reliance on guardianship. The strategies discussed are intended for use by a range of audiences interested in increasing people’s ability to make informed decisions.

Executive Summary

Removing Barriers to Healthcare: A New Era for House Calls?

Nicole LeBlanc

Nicole LeBlanc explores how house call visits may be a way of providing more inclusive healthcare through interviews with two doctors and an advocate.

Person-Centered Practices in the National Core Indicators Data

NCI-IDD, NCI-AD, and NCAPPS

The National Core Indicators-Intellectual and Development Disabilities (NCI-IDD) and National Core Indicators for Aging and Disability (NCI-AD) can be used to assess in greater depth the experience of people who receive supports as it relates to person-centered practices and supports. In this brief, questions from the NCI-IDD and NCI-AD surveys are organized into the four main principles of person-centered practices that emerged from a national environmental scan of articles, policy statements, regulations, and websites of national aging, disability, and mental health organizations, created by NCAPPS.

Using NCI-IDD and NCI-AD Data to Assess Progress with Person-Centered Requirements in the CMS Settings Rule

Valerie J. Bradley, Dorothy Hiersteiner, Stephanie Giordano, Alexandra Bonardi, Bevin Croft, Laura Vegas, and April Young

This case study provides a hypothetical example of how one state in the US used National Core Indicator (NCI) data to monitor person-centered planning and practices and alignment with the Settings Rule.

Disability Employment & Being Person-Centered in the New Normal

Nicole LeBlanc

In celebration of National Disability Employment Awareness Month (NDEAM), Nicole LeBlanc reflects on the critical need for people with disabilities to have full access to employment and community inclusion opportunities as they recover from the COVID-19 pandemic.

Direct Support Professionals: Promising Recruitment and Retention Strategies

Valerie J. Bradley

This issue paper explores some strategies that providers can employ to increase recruitment and retention of Direct Support Professionals.

Measuring Up: How Do We Know That We Are Making Progress towards a System that Puts the Person at the Center?

Alixe Bonardi and Mary Lou Bourne

This presentation provides an overview of why measuring person-centered practices (PCP) is important, different perspectives on how to measure PCP, a framework for multiple measures of PCP and measures of PCP for quality improvement.

9 Elements of a Person-Centered System

Michael Smull

Michael Smull and his partners at Support Development Associates describe nine components that work in concert to make up a person-centered human services system in a series of blogs:

Health Care Person-Centered Profile

Identity Mark

NCAPPS subject matter experts have created a tool – the Health Care Person-Centered Profile – to communicate a person’s wants and needs if they are hospitalized without the direct support of their caregivers, family, neighbors, or friends.

The tool has two pages. The first page can be used to capture brief and vital information about the person’s health status. The second page contains the Person-Centered Profile, a one-page brief description of the things that can assist medical staff in providing more tailored and person-centered care. You can use the accompanying instructions to fill out the template for yourself, someone you love, or someone you’re caring for. We have also created examples that show how the tool can be used by people with a range of different backgrounds and concerns.

Person-Centered Practice as Anchor and Beacon: Pandemic Wisdom from the NCAPPS Community

Connor Bailey, Martha Barbone, Lydia X. Z. Brown, Alixe Bonardi, Bevin Croft, Marian Frattarola-Saulino, Karyn Harvey, Miso Kwak, Kelly Lang, Nicole LeBlanc, Michelle C. Reynolds, Carole Starr

This paper explores themes from a series of short videos created by members of the NCAPPS community in the early days of the pandemic. The themes are organized in four levels:

  1. individual disabled people and their/our spouses, family, and friends
  2. person-centered strategies
  3. system, services, and providers
  4. society

The paper discusses both specific factors within each of the levels and the complex interplay between each of the factors at four levels.

Race Equity and Brain Injury

Monica Lichi, Eric Washington, and Connor Bailey

This presentation and accompanying brief provide an overview of racial disparities in access to health care broadly, and recognition and treatment of brain injury more specifically. NCAPPS Brain Injury Learning Collaborative faculty Monica Lichi and Eric Washington discuss the importance of understanding implicit biases, and engaging in self-advocacy and collaboration.

Technical assistance needs for realizing person-centered thinking, planning and practices in United States human service systems

Bevin Croft, Jami Petner-Arrey, and Dorothy Hiersteiner

This paper summarizes and analyzes seven common themes that emerged from the technical assistance applications at the inception of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), providing a unique window into human service system administrators' priorities for achieving more person-centered human service systems and the conditions that may promote or hinder systems change.

Applying Peer Support to the Top 10 Concerns About Person-Centered Planning in Mental Health Systems

Martha Barbone

In 2012, Janis Tondora and colleagues authored an article outlining the Top Ten Concerns about Person-Centered Care Planning in Mental Health Systems. In this brief, Martha Barbone, a member of the NCAPPS Person-Centered Advisory and Leadership Group, describes the role peer support can play in addressing each concern.

Community Living in the Era of COVID-19: Moving Toward a More Flexible, Accessible Future

Nicole LeBlanc; with editorial support from Alixe Bonardi and Connor Bailey

NCAPPS Person-Centered Advisory (PAL) group coordinator, Nicole LeBlanc, shares her reflections on how the COVID-19 pandemic has been impacting the disability community, and prompts us to take this crisis as an opportunity for improvement and innovation.

Key Elements to Ensure the DSP Workforce Has the Competency to Protect Health and Welfare in the Context of a Person-Centered Approach

Valerie Bradley

Training competent direct support professionals (DSPs) and maintaining the DSP workforce can greatly influence quality of life for people with disabilities who receive long-term services and supports. This issue brief prepared by Valerie Bradley discusses considerations for ensuring a training regimen will increase direct support staff expertise and improve the quality of services and supports.

Five Competency Domains for Staff Who Facilitate Person-Centered Planning

Janis Tondora, Bevin Croft, Yoshi Kardell, Teresita Camacho-Gonsalves, and Miso Kwak

This resource, which builds from foundational approaches to person-centered planning and the 2020 National Quality Forum Person-Centered Planning and Practice Final Report, describes five skill areas, or domains, that facilitators should possess to support a fully person-centered planning process: A. Strengths-Based, Culturally Informed, Whole Person-Focused; B. Cultivating Connections Inside the System and Out; C. Rights, Choice, and Control; D. Partnership, Teamwork, Communication, and Facilitation; and E. Documentation, Implementation, and Monitoring.

Plain language version

Person-Centered Practices Self-Assessment

Mary Lou Bourne for NCAPPS

Developed as part of NCAPPS technical assistance, this Self-Assessment is designed to help leadership at human service agencies in States, Tribes, and Territories to measure their progress in developing a more person-centered system. It contains questions about observable practices across eight system domains: Leadership; Person-Centered Culture; Eligibility & Service Access; Person-Centered Service Planning & Monitoring; Finance; Workforce Capacity & Capabilities; Collaboration & Partnership; and Quality & Innovation.

English | Plain language version | Español

Dignity of Risk and Person-Centered Planning During COVID-19

Nicole LeBlanc; with editorial support from Alixe Bonardi and Miso Kwak

NCAPPS PAL Group Coordinator, Nicole Leblanc, has a new publication which we are releasing on the NCAPPS website: “Dignity of Risk and Person-Centered Planning During COVID-19: Balancing Risk and Embracing Opportunity in the Face of Grave Challenges”. Check it out for a thoughtful discussion of her experiences during the COVID-19 pandemic and how this relates to risk and living a life that includes dignity of risk. “It might take some creativity, but I think people can still be doing things that allow them to take chances and grow. This is a good time to explore interests and try learning new skills.”

Person-Centered Thinking, Planning, and Practice: Representative Examples of State Definitions

Jane Lawrence

Although there are now a range of strong national definitions of person-centered thinking, planning, and practice, many state human service agencies find it important to develop their own local definitions for use in policy statements and implementation protocols. This environmental scan serves as a starting point for state, tribal, and territory human service agencies as they operationalize person-centered approaches in their local contexts.

NQF: Person Centered Planning and Practice Final Report

National Quality Forum

Description: In July 2020, the National Quality Forum completed a report that drew upon multi-stakeholder expertise to refine the definition of Person Centered Planning, establish a list of core competencies for person-centered-planning facilitation, and help establish a framework for measuring quality in person centered planning.

Engaging People Who Receive Services: A Best Practice Guide

Mark Friedman and Ruthie-Marie Beckwith for NCAPPS

This best practice guide is designed to assist human service systems to fully and effectively include people who receive services in system planning and improvement efforts. It is relevant for all systems that support older adults and people with disabilities and was created as part of NCAPPS technical assistance activities.

Asset Mapping:

Collective Insight for NCAPPS

Asset Mapping is process of mapping out (e.g., with visuals or lists) stakeholders and how they are already engaged by an agency and/or its allies. Developing an Asset Map provides the opportunity to identify existing groups, communication practices, trusted relationships, and products to springboard from as opposed to starting the engagement process from scratch. This toolkit contains a variety of resources – frequently asked questions, a glossary of terms, step-by-step instructions, facilitator tools, and example Asset Maps and Engagement Plans – to support human service agencies in their stakeholder engagement efforts.

Survivor Engagement: Lessons from The TAL-Group’s Advocacy Journeys

The Traumatic Brain Injury Advisory and Leadership Group

This resource shares the lessons from the journeys of members of the Traumatic Brain Injury (TBI) Advisory and Leadership Group (TAL-Group) as brain injury survivor who are active in advocacy work. The TAL-Group guides the priorities and assists with the activities of the TBI Technical Assistance and Resource Center (TBI-TARC).

Person-Centered Planning Facilitation: Summary of Research and Findings

NCAPPS - Yoshi Kardell, Valerie Bradley, Alixe Bonardi, and Jane Lawrence

This overview of person-centered plan facilitation services explores the experience of states that have specifically included plan facilitators in their HCBS waivers, the circumstance under which the states deploy plan facilitators, the rates paid, and training requirements.

Person-Centered Thinking, Planning, and Practice: A National Environmental Scan of Definitions and Principles

Human Services Research Institute

To guide the technical assistance provided as part of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), the Human Services Research Institute prepared a national overview of person-centered principles across aging and disability systems, including mental health systems.

Person-Centered Thinking, Planning, and Practice: A National Environmental Scan of Indicators

Human Services Research Institute

To guide the technical assistance provided as part of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS), the Human Services Research Institute conducted a national review of indicators that may be used to assess person-centered principles in aging and disability systems, including mental health systems.

Person-Centered Thinking, Planning, and Practice: A National Environmental Scan of Foundational Resources and Approaches

Suzanne Crisp and Jane Lawrence

This resource, created as part of NCAPPS technical assistance, provides an annotated summary description of foundational resources and approaches for person-centered thinking, planning, and practice.

Making the Most of Lived Experience

Carole Starr, Kelly Lang, and Eric Washington

This resource provides tips on making the most of lived experience when people with brain injury and professionals are working together on a team.

Supporting Virtual Meeting Accessibility

Nicole LeBlanc

Nicole LeBlanc, coordinator of the Person-Centered Advisory and Leadership Group for NCAPPS worked with the NCAPPS team to develop a lessons-learned guide to help make virtual meetings more accessible for all.